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Pascack Valley Daily Voice serves Emerson, Hillsdale, Montvale, Park Ridge, River Vale, Washington Township, Westwood & Woodcliff Lake

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Help Fight Rare Children's Brain Tumor At Emerson Golf Day

Lily
Lily Photo Credit: COURTESY: Anderson family

EMERSON, N.J. -- Players and sponsorships are needed for a special June golf outing fundraiser at the Emerson Golf Club to help families whose children suffer from a fatal brain disease and help find a cure.

The June 24 noon outing for the Lily LaRue Foundation will be followed by dinner.

Organizers are also seeking tricky tray donations of goods or services of any kind or amount.

GO TO: www.loveforlily.net

The foundation is named for Lily LaRue Anderson of Wayne, who was five years old when she was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG) in May 2014.

The tumor sat in the middle of her brain stem — which holds the “wiring” for motor control and sensation — and couldn’t be removed.

It’s a particularly cruel disease: The median overall survival term is 9 months.

Lily lasted 11.

Not expected to make it to Christmas, she died a day after the following Easter.

In that time, she and her family made a deep impression on many.

All proceeds from the golf outing will go to families affected by DIPG, as well as to support the DIPG Collaborative, which is focused solely on supporting research and trials by leading physicians to find a cure for the tumor.

GO TO: www.loveforlily.net

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